Friday, September 2, 2016

September 2, 2016 Hello!!!!!

I am still here after over 15 years.......I know I need to write a book .... Every time something new happens medically.....I think what next?

Last year I woke from the dead.... Literally..... This year a new immunotherapy drug was developed called Keytruda by Merck.   I am taking it and although experiencing some side effects as of late ....I think that I will live a lot longer.   I am one of a handful of people doing this drug for Leiomyosarcoma.    I may be the cat with way more than nine lives :)

I am not sure how to recap 15 years of doing this.....it is a wave of grateful....anger ... Love .... Joy... Disappointment ...sadness.... Happiness...feeling petrified and more that changes everyday .... Perhaps every minute.

I am wiser now..... Very much wiser..... The cliche.... What I know now .... Wish I knew in around 2008..... Although doing this since 2001.... You can read here from the beginning.  Over 500 posts.

In the next few days I will write all about our healthcare system ......please come back tomorrow .

Dead Woman Living ..... Really living .... Sort of?   Let's see.    I think so.    Let's re examine the whole cancer survivor thing .....really