Tuesday, March 21, 2017

Cancer Survivor...One more Thing...Friendship and Cancer

Before I must go off for a few days.....Many of you know that I am doing this dance almost 16 years.  Along the way I have met the most amazing people from everywhere...all over the world...every religion...every color ...

Many of these folks became my friends other than cancer.  We got to know each other as people...family...friends etc.   It was a natural process....I met in person people from all over the world and in my own neighborhood.  And many of them are dead.  I watched them die ...they watched me be worse and then better....

And often they will apologize for leaving me to go on by myself in illness and perhaps my own death....at some point right?   I must tell you and them I have no regrets in these amazing friendships.  I only hate my heart break at watching another amazing human leave this Earth too soon.

Some will apologize about discussing death with me .....they will discuss things with me that they cant tell their families and even closer friends because the thought of them not being here is just too painful to bare.

I don't leave them when these talks are needed the most and I may be the only person willing to listen at such difficult moments.  Sometimes I say nothing....there is nothing to say...to just listen...

I guess I want you to know that every person that has been my friend....I miss you ...that I think of you a lot....I keep the letters you have written me over the years and gifts and I look at our pictures....and some amazing adventures that we have had together.

This cancer journey that has been horrific in my opinion....You all made it bearable for me...without you I would have been very lonely.  You are in my heart always and if heaven exists I want to spend that part with you as well.  I miss you forever.

In cancer some healthy people ...they will run away from you or you might barely hear from them ever......some folks just do not possess the amazing gene for kindness and compassion...some think all they need to do is serve food at a homeless shelter once a year....and all the other days they spend running....don't be a runner.......open your heart and help someone once in awhile.  It's an amazing feeling.   

Cancer Survivor...Be Back in a Couple of Days...Pay Attention to Healthcare Bill!

Hi All...Thank You for reading...I am not here for a few days due to Medical Stuff.   Thanks so much for reading all of these years....

Keep fighting for healthcare...negotiate medical bills, etc.

Tell you reps to stop lying and be accountable!   If they are not do not vote them back!

Be back in a few days

Thursday, March 16, 2017

Cancer Survivor.....Go to the Beginning...Find Me ...Find Yourself...and Rise

I have over 600 posts here and have cancer almost 16 years.....I have been typing since 2009....

Someone asked me today why I fight so hard for myself and others....

I would suggest that you go back and read from the beginning moving forward.  It is there that you will find me.....the cancer side of me.....

That person that had about 15 major abdominal surgeries....2 chest ports, 2 stomach ports, 2 chest tubes, a pic line....about 6 chemos and immunotherapy... and a heart attack in 2015 where I died and then woke back up....known as a miraculous recovery......and last not least....video assisted thoracic surgery known as VATS....oh and SBRT radiation to my lung, ribs...

I am not sure my kids remember me without cancer. 

I have seen people go without food for their care or for their loved ones.....homes lost....no money for rent in a timely fashion....

I watched a 24 year old kid melt away because he never bought insurance and died of a Sarcoma.  All he could get was Medicaid at the time ....there was no ACA and he died ...a young man working his way through college and waiting tables .....his entire life ahead of him.  Dead because of sub standard care.

I encounter everyday sick folks not understanding how any insurance works or does not work....I know many who understand it and still it does not work...

So Congress I could go on forever with real life cases....don't care what you call it ....get our healthcare to work for all....for all of us.....We are watching....no more lies....no more pay offs...no more bullshit.

For my 60th birthday in June.....I may just carry a sign and sit at your door step ....the steps of Congress....with my sign...I am coming ...maybe some folks will come with me?

Join me tomorrow in a Facebook Live Event in Treat Your Healthcare Like a Business...9am Pacific Time.


Cancer Survivor....About Town Hall Meetings and other Healthcare Stuff

Are you attending Town Hall Meetings?  There is growing evidence that your representative says one thing to you in person and then goes back to Washington and does not follow through.  This means that we are being lied to....in person ....on video so that there is proof.

Go look up how your Congress person votes after a Town Hall Meeting and know the truth!  Don't be fooled!  We voted them in to stand by their words and act with honesty and integrity.  Many of them have lied!

We are also not hearing about the far right that wants to have caps on insurance coverage......still have underwriting as a form of denial of any coverage...

Make sure you know where your rep stands and how they vote in person...in Congress.

I am sick of the lies....aren't you?

Long Term Care Info

The average cost of Assisted Care Living.....at least $4000 a month.....could be $15,000 a month with dementia

Informal Caregiver Cost......about $15 an hour

Nurse Visit ....about $25 an hour or more....

We will talk Long Term Care tomorrow.....and why understanding what this is critical to your care.


Cancer Survivor...Congressman Mo Brooks of Alabama

Senator Mo Brooks of Alabama last night on MSNBC stated that he would like to bring back caps on Insurance.......bring back underwriting as a form of denial of coverage, and on and on.   All he was for was the lowering of taxes....

Taxes will be less because you will be dead......He wants even more limited coverage ....Paul Ryan is not the  only one....unseat this man in his next election.....he does not care about you...

I have some questions.....

How much money have you taken from Health Insurance companies in campaign donations or otherwise?

What is your health insurance coverage as it stands today?

What is the basis for your extreme idiot viewpoint?

Please folks....pay attention to how your party is actually voting ....and why......your life is at stake.

Make every person accountable regardless of party!

Mo Brooks.......We will unseat you next election....Pay attention Alabama....

Your state is beautiful and folks need help!

Monday, March 13, 2017

Cancer Survivor......Off Topic.....How Did Everything Get so Crazy...an Average Person's Opinion

I have been typing since 2009......have cancer since 2001.  Even back then health insurance was crazy...people were going broke.....we just did it quietly....there was no social media.....we thought maybe it was just a personal issue...many were too embarrassed to speak up about these issues....like 5...10 ...15 ...20 thousand dollar medical bills or more.   No one really knew that you could fight back.   It was the beginning....

As well we did not pay attention too much to big business and the fact that there were lies everywhere in both parties......there  was a ton of lobbying ...politicians on all sides of the fence were accepting campaign contributions from Health Insurance Companies......frankly...we did not stand a chance.....and we were not paying attention because we wanted to trust the folks from everywhere that we elected to office.

One day we realized what was going on......all the lies piled up...our healthcare sucked and we went looking for someone to blame....

Then more and more lies ...they got bigger ....broader....and everyone was doing it....everyone...

Then we realized how much our elected officials just wanted money, and power....including those elected recently...possibly more so recently.

So now we don't trust anyone and we still have crap coverage.

I want to trust someone....actually more than someone...so I am calling on both parties to Rise.....say you screwed up and fix it....

Don't care what you name it....fix it.....Speaker Ryan...You may need mercy when we are done.

Healthcare is Human Right...good, decent healthcare....stop lying to us.  Fix It!

Life is simple....people make it complicated.  You can fix this to make the United States a better place.  So far I am not seeing it.


Healthcare 2017...Congressional Budget Office Release Healthcare Costs and it is Horrific...Just Say NO!

Speaker Ryan...You need to apologize....Folks take a look...please go to www.cbo.gov and see the real story on this plan.

And let me be honest......The Affordable care Act needs much improvement.....it is far from perfect. 

I call on both parties......especially as of late ...Speaker Paul Ryan....I need no mercy....I need no more lies.  I have cancer for over 15 years....a quarter of my life.  I better than you understand our healthcare system and how it works.

Grow some empathy...grow some sympathy....be ADULT....stop acting like a 2 year old.  Do you want this to be your legacy?  That You uninsured millions more Americans?  That you gave CEO's of all the healthcare companies Tax breaks?

That you lied to Americans telling them that Health Saving Accounts will be an option for them when they get sick?

That everyone's healthcare plans would rise a minimum of 20 per cent?  On and On and On....

You can also see posts from me in Facebook in Treat Your Healthcare Like a Business.

I am just going to keep going until I die fighting for us.......

I dare you Speaker Ryan to speak to me about Healthcare....stage 4 plus cancer survivor...I dare You

Read my 600 posts and then let's talk.  I am here for You...lol

More tomorrow