Sunday, November 27, 2016

Cancer Survivorship....Thanksgiving 2016

It was and now its gone......If I thought that I might be alive in 2016 ......it would be cancer free....not actually living with tumors for so many years.....it is unbelievable really....but here I am!

My non partisan political advice for this year.......about Patient Advocacy and money...

Unfortunately many people are angry at this time where ever you might fall in your beliefs....

Get involved in your care in a very deep way for yourself and others.....

Learn how your health insurance really works.....

If you are choosing a plan right now please speak with all of your healthcare professionals and make sure that they will accept your plan after the first of the year....all of them...even the pathologist....the lab that does your blood ....every single place.

If an error happens and you get a large bill, know that you can negotiate it.......from anywhere....if you feel unskilled in this area.....find a person that knows how to speak up!

It is time to write and call your reps in Congress....all of them ....tell your story so that they have a clear understanding of what is not working.

Ask Congress to finally discuss the health insurance companies and the largest rip off of the public in US history....while we were sleeping.

Ask Congress to account for the fraud in our system especially with regard to Medicare and ask why in an entire election no one speaks to this subject??

It is time for the United States to wake up and truly care for ourselves as people where good healthcare is truly a human right and not something that we declare bankruptcy over.........

Whatever plan .......it has to work ....not work us...not kill us...not deny us care.....not make us broke.......


It is time for EVERYONE to STAND UP.........and SAY.........FIX THIS!

Sunday, November 20, 2016

Cancer Survivor and Social Media

I grew up with invention of the computer and the internet.  There is a good and bad side to the computer and social media....Lets start with the bad and get into the good....

The Bad....

1.  Facebook....texting....e mail is so not personal .....remember the phone or an actual visit?  We have forgotten this in our busy crazy world.  It is sad.  Countless times folks have said to me....I see you on Facebook so I know what you are doing and that you are OK.....no you do not and no you don't.

People have chosen to be impersonal in what needs to be a very personal time.  I understand.  It is frightening.  You do not know what to say.  In cancer for over 15 years I understand however I write this for those that do not.   This does not mean that we accept it. xoxo

2.  To the Patient....do not replace social media with live people please....!  If you are able please get out of your space!  Do something new...go get a hug....a machine and strangers does not replace live people.  Pull up your pants and get out of the house!

The Good

1.  Information about your illness
2.  You can connect with some people in your situation.  Just don't sit there for hours.  Your brain will die.  You can get addicted and subconsciously absorb nonsense.
3.  Be careful who you are speaking with and give your info ....many groups are public
4.  Set Goals before hand.....why are you doing social media...what is your purpose...who is your target audience.  Be as specific as possible.   Does your info help someone and/or yourself.  Are you lifting someone up?  What help do you need?

This is short......your life may be long....take as much control as possible so that when the uncontrollable occurs you may be a little more prepared.  xoxo

You are the President of your care.....who is in your cabinet? 

Saturday, November 19, 2016

Cancer Survivorship....All kinds of Info ......

Many People ask me where is the book?  I have Cancer for 15 years ....I even woke from the dead in 2015.  I have personally helped multitudes of people as a career and for free......somewhere along the way there was so much disarray that I could not focus on just one thing.....there was so much happening all of time.  So if you are struggling..... here are a few suggestions on survivorship....and really living...

I have said most of this before however often we need reminding....especially in todays times...

1.  Take Deep Breathes and remember who you are....who you have been and even who you want to be .....yes want to become...you are not dead yet...everyday that you are alive and can function...you are not dead and life goes on.....if you think of yourself as a dead person ...you will be alive and dead on the inside.  That would suck.  Do not go dead on the inside!!   Don't be the Walking Dead!

2.  Organize your life.   This is the hardest part really...you are wondering every minute about the next needle or hospital stay....you are petrified on every level...maybe you have kids....maybe you are a care giver....maybe your job is at stake...so many maybes!!!  Sit down with someone you trust and organize yourself.

a.  Your treatment plans
b.  Money...all of it....a lot...a little ...whatever....
c.  Medical Directive and Emergency Plans for all...your trust/will
d.  Insurance Info...understand it?   Beneficiaries updated on life insurance?  Benefits at work etc.
e.  You don't understand something?  Find someone who does.  Practice assertive skills...be direct, Knowledgeable and kind.
f.  Connect with people like yourself.....make up your mind to not do cancer alone.

Do things for yourself that give you a sense of pride and control....it makes you feel better.

Do not feel guilty, ashamed, shy about what happened.  It is not your fault.  Gather yourself up and think out of the box...do new things....

Everyone is watching you for clues on what to do for you and help you.  Please tell them how to help you.  It is hard to do this as an independent person.  Please tell them.

There is so much more.....Speak UP!  More Later....


Friday, November 11, 2016

Cancer Survivor ........Medical Insurance Companies

Not one Politician....Democrat or Republican discusses Medical Insurance Companies and the power that they have over the economy and all of the politicians.  Not one politician discusses the Health Insurance Lobby and all of the fraud against the public.

Why is this subject never discussed and addressed. 

Why would you privatize Medicare, when all you have to do is get rid of the Fraud and the program would be fully funded?

Why is fraud never discussed by any party?

I am tired of being lied to and taken advantage of by every system that we have created.

We are awake now and want change.....Positive, honest, affordable change.

Are you ready?


Wednesday, November 9, 2016

Cancer Survivorship and Health Insurance

Where do I begin?   In my desire to be 100 per cent non partisan the next few posts will be analytical in nature with a few stories thrown in.......I will lean all over the place...left, right, middle....it is my opinion on what works and what does not and where we might go from here.

No hate just debate please....Thank You......I am not going to discuss the past as far as blame because my purpose is to move forward in healthcare....

Remember that I am a stage 4 cancer patient for over 15 years.....so my bullshit meter is low.....my value of time is high...and my only desire is to get us better care and save money.  I am a simple human.

I also have great respect and love for medical people.  We will discuss that as well.

You can comment as we progress....I am the only moderator so I need 24 hours to respond.   And I may end a topic to move on.  Thanks for your patience.

I also have a secret goal of getting you involved in your care.....don't tell anyone!

I am a patient advocate that wants to put the power in you as much as possible......

Now a story...a real one ...my own....I joke about the hospital a lot....I call it the hotel ....I am there often......same floor ...same nurses...same CNA ( certified nursing assistant), same docs.

Fortunately you get your own room where I go.

One day the gentleman next door was coding...heart attack...I could hear everything.   They were able to bring him back.  Thank heaven.   When it was over I found myself in my room with 4 nurses smiling at me and sitting.  I asked,"Why are you all here?"  They answered,"We need to rest a few minutes after the code and you are our person!" You are our patient where we know that you will do your best to get better and you like us....One of the nurses in the group helped me when my Mom died while I was in the hospital...I had to arrange her funeral from my hospital bed after a huge abdominal surgery.....I knew them a long time.

This is the story that popped in my head today......we will move on....

Sunday, November 6, 2016

Cancer Survivor ....The Repeat

Surviving cancer once is way different than surviving it multiple times or actually living with tumors for years.   I have done both and many people I know are doing it as well.  Its different...emotionally, medically, mentally and monetarily.   Each case is also very different.

Some folks can not work....some can....part time...full time.....some folks loose careers and must reinvent themselves.

Some folks mentally remain devastated for the rest of their lives living in cancer only in their heads.  They can not escape the fear and it ruins their lives.

Some will rise, and reinvent themselves better than when they were well.

Some will be in between.  Medical stuff is like a see saw.....sometimes you are up and sometimes you are down. 

Money does have a lot to do with how you rise and fall.....the more you have, the more opportunity there is for you...without question.

Cancer can be much of the time a repeat performance....again and again until the end.....years and some times decades.

Living with constant illness is a job in and of itself. 

Regular Life happens as well...years pass....family and friends come and go....that is a whole other story.....

Many folks ask me how I am ..."I will say today good enough"  I am sure they wonder exactly what that means......

more next post....I am waiting until after the election to discuss health care




Friday, November 4, 2016

Cancer Survivorship Update

Hi All

You can now comment and it will go to Moderation and posted within 24 hours....you can ask a question as well.

Next post later today is how this Blog will operate in the future with a personal update.

Thanks for always reading!  7 years here.....